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Information for Advocates

• Promising Practices
• In HCBS
• In the PAS Workforce


• State Related Information
• State Disability Statistics - Find disability statistics for your state
• Personal Home Care Workers - Find the Number of Personal Home Care Workers in your State
• Medicaid Waiver Data - Find Medicaid Waiver Data for your State
• Medicaid HCBS Data - Find Medicaid HCBS Data for your State
• Federal HCBS Funding - Find Federal HCBS Funding for your State
• State only Funded HCBS - Find State only Funded HCBS for your State
• Demo Waiver Information - Find Demo Waiver Information for your State
• Olmstead Plans and Lawsuits - Find Olmstead Plans and Lawsuits in your State
• Research Demo Projects - Find Research Demo Projects in your State
• Contact Information and Descriptions for Medicaid Waivers - Find Contact Information and Descriptions for Medicaid Waivers for your State
• State Agencies related to PAS - Find State Agencies related to PAS
• State Resources for Employment of Persons with Disabilities - Find State Resources for Employment of Persons with Disabilities
• PAS Reports and Publications related to State - Find PAS Reports and Publications related to State
• PAS Workforce Library related to State - Find PAS Workforce Library resources related to State

Reports and Publications

All Avocate related Reports and Publications

Recent additions:

Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, Vol. 65, No. 3, 338-355 (2008)
View Abstract and Obtain Full Version

Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008) Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist 48:181-189 (2008).
View Abstract and Obtain Full Version

Newcomer, R., T. Kang, C. Graham. 2007. Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46: 385-390.
View Abstract and Obtain Full Version

Library

All Avocate related Publications

Recent additions:

Waterstone, D., Kang, T., Flores, C., Howes, C., Harrington, C. & Newcomer, R. (2004) California's In-Home Supportive Services program: Who is served? Published on the Center for PAS website http://www.pascenter.org/documents/IHSS_Final_Report.pdf
View Abstract and Obtain Full Version

Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California's healthcare system. Briefing Paper. California Policy Research Center, Berkeley, CA.
View Abstract and Obtain Full Version

Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C. & Dal Santo, T. (2003, February) A profile of family caregivers: Results of the California statewide survey of caregivers. Center for the Advanced Study of Aging Services, University of California Berkeley, Berkeley, CA
View Abstract and Obtain Full Version

Presentations

All Advocates related Presentations

Recent additions:

Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., Oxford, M. (2004, April 26). Meeting the Nation. Presented at the National Conference: "Meeting the Future Research and Training Needs of the Disability Community" hosted by Nartional Association of Rehabilitation Research and Training Centers (NARRTC).
Download Powerpoint | Web text-only version

Kraus, L., Oxford, M. , & Gold, S. (2005, July 11). Living independently and personal assistance services: From court research to action. Presented at the 2005 NCIL Independent Living Conference - "Advocacy IS a Service" hosted by The National Council on Independent Living (NCIL).
More information

Kraus, L. (2007, November 6). New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Links

All Advocates related Links

Recent additions:

Steve Gold’s Treasured Nuggets of Information
http://www.stevegoldada.com

Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.

The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.

Carework Network
http://www.carework-network.org/

The Carework Network is an international organization of researchers, policymakers, and advocates involved in various domains of care work. Carework research and policy focus on the caring work of individuals, families, communities, paid caregivers, social service agencies, and state bureaucracies, and ask important questions about such matters as:

• how women's labor force participation has affected the nature & scope of women's and men's caring work;
• how identities influence carework;
• how inequality based on gender, race/ethnicity, sexual orientation, and other factors relates to caring;
• how caring work is recognized and compensated;
• how various state welfare policies the distribution of carework;
• and whether and to what extent citizens have a right to receive, and a duty to provide, care.

Health Care for Health Care Workers
http://hchcw.org

An initiative from the Paraprofessional Healthcare Institute, Health Care for Heath Care Workers aims to bring public attention to the crisis facing tens of thousands of direct-care workers who assist millions of Americans with age-related and other disabilities but lack coverage themselves.