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Information for Paid Assistants, Attendants and Caregivers

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Reports and Publications

All Paid Assistants Attendants and Caregivers related Reports and Publications

Recent additions:

Misra, S., Orslene, L.E., & Walls, R.T. 2007. Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3), http://www.dsq-sds.org/2007_summer_toc.html
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Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=265010
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Barrett, J. (2007). Leadership Stories from Maine: The Voices of Direct-Care Workers in Culture Change. Bronx, NY: National Clearinghouse on the Direct Care Workforce, Northern New England LEADS Institute. Retrieved Dec. 9, 2007 from:
http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=265110
View Abstract and Obtain Full Version

Library

All Paid Assistants, Attendants and Caregivers related Publications

Recent additions:

Silverstein, R. (2003). The applicability of the ADA to personal assistance in the workplace. (Policy Brief). Boston, MA: The Institute for Community Inclusion.
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InfoUse. (2003). Consumer direction in personal assistance services: How to work together [CD Rom & Video]. United States: Program Development Associates.
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Kitchener, M., Ng, T., & Harrington, C. (2004) Medicaid 1915(c) Home and Community Based Services Waivers: A National Survey of Eligibility Criteria, Caps and Waiting Lists. Home Health Care Services Quarterly 23/2: 55-69.
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Presentations

All Paid Assistants, Attendants and Caregivers related Presentations

Recent additions:

LaPlante, M.P., Kaye, S., Kang, T., & Harrington, C. (2003, November 18). Unmet Need for Personal Assistance Services. Presented at the 131st Annual Meeting and Exposition hosted by American Public Health Association.
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Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., Oxford, M. (2004, April 26). Meeting the Nation. Presented at the National Conference: "Meeting the Future Research and Training Needs of the Disability Community" hosted by Nartional Association of Rehabilitation Research and Training Centers (NARRTC).
Download Powerpoint | Web text-only version

Kraus, L., Stoddard, S. (2004, November 9). Personal assistance services in the workplace: Voices from the field. Presented at the American Public Health Association 132nd Annual Meeting and Exposition hosted by American Public Health Association.
More information

Links

All Paid Assistants, Attendants and Caregivers related Links

Recent additions:

National Association for Home Care and Hospice (NAHC)
http://www.nahc.org

The NAHC is a trade association that represents the home care agencies, hospices, home care aide organizations and medical equipment suppliers. The site provides up to date information about the work that the association does in advocating for home and community based care as well as recent government policies that affect home and community based health care.

California Long Term Care
http://www.calnhs.org

The California HealthCare Foundation and the University of California San Francisco have a free website on long term care services in California that is designed for consumers, caregivers, providers, discharge planners, and advocates. This site provides comprehensive information about the quality of long term care in the state including nursing and intermediate care facilities, home health, hospice, adult day health and other long term care services such as residential care.  The site has information on Nursing Home Alternatives, How to Select a Service, Questions to ask when visiting potential choices, Resident and Family Rights, and Links.

This site does not address intermediate care facilities for the developmentally disabled, senior living communities, or retirement homes but it has extensive resources to guide in finding services.

AGS Foundation for Health in Aging (FHA)
http://www.healthinaging.org

The American Geriatrics Society (AGS) Foundation for Health in Aging (FHA) is a national non-profit organization established in 1999 by The American Geriatrics Society. The foundation aims to build a bridge between the research and practice of Geriatrics and the Public, and to advocate on behalf of older adults and their special health care needs. The website has information on common health problems such as diabetes, falls, etc. and educational materials on geriatrics.