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Information for Family or Friend Caregivers

• Promising Practices
• Disability Statistics for my State - Find information on PAS in your state
• Waivers in my State - Find waivers for PAS in your state
• Personal Home Care Workers - Find the Number of Personal Home Care Workers in your State
• Olmstead Plans and Lawsuits - Find Olmstead Plans and Lawsuits in your State
• Contact Information and Descriptions for Medicaid Waivers - Find Contact Information and Descriptions for Medicaid Waivers for your State
• State Agencies related to PAS - Find State Agencies related to PAS
• PAS Reports and Publications related to State - Find PAS Reports and Publications related to State
• State PAS Workforce Library - Find PAS Workforce Library resources related to State

Reports and Publications

All Family or Friend Caregivers related Reports and Publications

Recent additions:

Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=265010
View Abstract and Obtain Full Version

Newcomer, R.J., Covinsky, T., Clay, K., and Yaffe, K. 2003. Predicting 12-Month Mortality for Persons with Dementia. Journal of Gerontology: Social Sciences, 58(3):S187-S198.
View Abstract and Obtain Full Version

Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services.
View Abstract and Obtain Full Version

Library

All Family or Friend Caregivers related Publications

Recent additions:

Feinberg, L.F, Newman, S.L., Gray, L. & Kolb, K.N. (2004, November) The state of the states in family caregiver support: A 50-state study. Family Caregiver Alliance, San Francisco, CA.
View Abstract and Obtain Full Version

Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California's healthcare system. Briefing Paper. California Policy Research Center, Berkeley, CA.
View Abstract and Obtain Full Version

Doty, P. (2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief, Family Caregiver Alliance, San Francisco, CA.
View Abstract and Obtain Full Version

Presentations

All Family or Friend Caregivers related Presentations

Recent additions:

Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., Oxford, M. (2004, April 26). Meeting the Nation. Presented at the National Conference: "Meeting the Future Research and Training Needs of the Disability Community" hosted by Nartional Association of Rehabilitation Research and Training Centers (NARRTC).
Download Powerpoint | Web text-only version

Kraus, L. (2007, November 6). New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Links

All Family or Friend Caregivers related Links

Recent additions:

California Long Term Care
http://www.calnhs.org

The California HealthCare Foundation and the University of California San Francisco have a free website on long term care services in California that is designed for consumers, caregivers, providers, discharge planners, and advocates. This site provides comprehensive information about the quality of long term care in the state including nursing and intermediate care facilities, home health, hospice, adult day health and other long term care services such as residential care.  The site has information on Nursing Home Alternatives, How to Select a Service, Questions to ask when visiting potential choices, Resident and Family Rights, and Links.

This site does not address intermediate care facilities for the developmentally disabled, senior living communities, or retirement homes but it has extensive resources to guide in finding services.

National Family Caregivers Association (NFCA)
http://www.thefamilycaregiver.org/index.cfm

For people who have family members as caregivers, this website gives tips and advice for families and caregivers.

National Clearinghouse on the Direct Care Workforce
http://www.directcareclearinghouse.org/i_jobs_o.jsp

The National Clearinghouse on the Direct Care Workforce tracks national and state policies that relate to the PAS workforce. Information for consumers of Personal Assistance Services can be found on their Consumer Direction section of the Direct Care Clearinghouse web site.