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Home and Community-Based PAS > Project Abstract

Project Abstract

The primary goal of this five-year research project is to identify, track and analyze programs and policies concerning formal (paid) PAS delivered in the home and community (as opposed to institutional settings). The project is directed by Martin Kitchener and Charlene Harrington at the University of California, San Francisco and comprises four streams of research.

The first study conducts longitudinal analyses of the three main Medicaid home and community-based services (HCBS) programs: 1915(c) waivers, personal care, and home health. For each program, annual surveys of every state are used to collect data regarding program expenditures, participants, services and policies. Analyses of these trend data are made widely available on this website and through publication.

The second research stream tracks and analyzes national PAS policy issues including: responses to legislation and legal judgments (e.g., Olmstead decision), attempts to reduce barriers to PAS programs, better practices and model state programs, and innovative/demonstration projects (e.g., Cash and Counseling). Information and evaluations of these developments are collected from a wide range of sources including: published reports, web searches, focus groups, and interviews with state officials and PAS users.

The third research stream conducts a series of statistical analyses of a uniquely rich database to profile PAS participants in Michigan, better understand their characteristics, and evaluate the outcomes of their care. This study is being conducted by Brant Fries and Mary James at the University of Michigan.

The fourth study identifies and evaluates nursing facility 'transitional' models designed to eliminate barriers encountered by adults with disabilities in accessing and utilizing PAS to support employment, functional independence and community integration. This activity is led by Nancy Miller at the University of Maryland and involves interviews with PAS users in states including Maryland and California.