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The Home and Community-Based
PAS Project
About
The primary goal of this five-year research project is to identify, track
and analyze programs and policies concerning formal (paid) PAS delivered
in the home and community (as opposed to institutional settings). The
project is directed by Martin
Kitchener and Charlene Harrington
at the University of California, San Francisco and comprises four streams
of research.
Promising Programs
The Center for Personal Assistance Services is conducting
a study of Medicaid Optional State Plan Personal Care Services (PCS)
programs. The study involves two main activities. First, better practices
(e.g., consumer direction) are identified from the literature to use
as criteria for selecting promising programs. Second, detailed case studies
are conducted on the promising programs.
 State
by State Home and Community-Based PAS Data Available
State Medicaid 1915(c) HCBS Waiver Contact Info and Descriptions
Find contact information and learn about each Medicaid 1915(c) HCBS waiver
in any state.
The 1999 Olmstead Supreme Court Decision
In a landmark interpretation of the ADA (Americans with Disabilities Act),
the Supreme Court decided that people with disabilities have a right to receive
care in the most integrated setting appropriate and that unnecessary institutionalization
violates the ADA. All states must now comply with the decision. The Center
for PAS is tracking the legal and policy ramifications of the Olmstead decision
in each state.
State by State Medicaid Home and Community-Based Services for 2002
Find the total amount of expenditures, expenditures per 1,000 population,
the number of participants, and the participants per 1,000 population for
various Medicaid HCBS programs: Home Health, Personal Care Services, and
the 1915(c) HCBS Waivers. Compare these data with US totals.
State by State Medicaid 1915(c) HCBS Waiver Data for 2002
Find the total amount of expenditures, expenditures per 1,000 population,
the number of participants, and the participants per 1,000 population for
several waiver target groups. Compare these data with US totals.
PAS Funding by State:
Federal funding
Shows the total funding by state from the Older American's Act Title III Programs and Alzheimer's Disease
Demonstration Grants.
State funding
State matched funding to some federally funded long-term care programs.
Reports and Publications
A list of publications produced by the Home and Community-Based PAS
project. The citations provide links to abstracts, press releases, and
either the entire publication, or information about where to obtain it.
All Home and Community-Based PAS Reports and Publications
Recent additions
Newcomer, R., T. Kang, C. Graham. 2007. Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46: 385-390.
View Abstract and Obtain Full Version Swan, J.H., Harrington, C., Dryer, K., Pickard, R.B., Covert, J.M. & Gulur, P. (2007) Medicaid Nursing Facility Payment in the Face of State Fiscal Meltdown. Long Term Care Interface. In Press.
View Abstract and Obtain Full Version Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19 (3): 9-26.
View Abstract and Obtain Full Version
Library
Citations and abstracts of important publications related to Home and
community-based PAS. Information on how to obtain the complete text is provided with each citation.
All Home and Community-Based PAS publications
Recent additions:
Dulio, A., Perry, M., Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: Insights from enrollees in four states. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7756.cfm
View Abstract and Obtain Full Version Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: A review of four state programs. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7757.cfm
View Abstract and Obtain Full Version Binette, J. & Dinger, E.L. (2008). The 2008 Hawaii health and long-term care survey. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from:
http://www.aarp.org/research/longtermcare/costs/hi_ltc_08.html
View Abstract and Obtain Full Version
Presentations
Presentations given by the Home and Community-Based PAS project with
links to abstracts, powerpoint files and summaries.
All Home and Community-Based PAS presentations
Recent additions:
Ng, T., Kitchener, M., & Harrington, C. (2007, November 19). Medicaid Long Term Care Home and Community Based Services for the Elderly: Trends in Programs and Policies. Presented at the 60th Annual Scientific Meeting of The Gerontological Society of America hosted by The Gerontological Society of America.
More information
Kang, T. (2007, November 7). Disparities in service utilization and expenditures for individuals living at home or in the community in California. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
Miller, N.A., Harrington, C., Brody, A.B., Yu Kang, R.N. (2005, December 14). Participation in a Nursing Home Admission Decision Among Working Age Individuals. Presented at the American Public Health Association Annual Meeting .
More information
Links
The Center for PAS has assembled a list of links to organizations,
resources and information available on the web related to Home and Community-Based PAS.
All Home and Community-Based PAS Links
Recent additions: National Conference of State Legislatures
http://www.ncsl.org/programs/health/olmstead-home.htm Links to publications and policy reports concerning HCBS and the Olmstead case. Includes annual reports on Olmstead planning activity by state and links to other projects. Olmstead was brought under the Americans with Disabilities Act (ADA) Title II and is most relevant for Formal and Informal PAS and Home and Community-Based PAS. DisabilityInfo.gov
http://www.disabilityinfo.gov/ DisabilityInfo.gov is the federal government's one-stop Web site site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. Program topics by state are: employment, education, housing, transportation, health, benefits, technology, community life and civil rights. U.S. Department of Health and Human Services (DHHS), Office of Civil Rights
http://www.os.dhhs.gov/ocr/mis.htm Information and web-links to all Federal healthcare programs relating to the Olmstead decision and community integration, including new announcements made by the Government.
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