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Information for PAS Users Photo of PAS user and their Personal Assistant

Personal Assistance Services (PAS) can be crucial to your ability to live independently. Whether you are new to PAS or have been using them for years, you may have questions or need more information.

The Center for Personal Assistance Services has gathered resources for you to find out what you need to know about Personal Assistance Services


Training Resources


Promising Practices

Below are the promising practices relating to PAS Users.


Reports and Publications

A list of publications produced by the PAS Users project. The citations provide links to abstracts, press releases, and either the entire publication, or information about where to obtain it.

All PAS User reports and publications

Recent additions

Harrington, C., Kang, T. & Chang, J. (April 2009). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities: Vol. 47, No. 2, pp. 108–124.
View Abstract and Obtain Full Version

Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs 28, no. 1 (2009): 262–272.
View Abstract and Obtain Full Version

Kaye, H.S., Yeager, P., & Reed, M. 2009. Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), 194-203.
View Abstract and Obtain Full Version


Library

Important publications related to PAS Users. Abstracts and information on how to obtain the complete publication is provided with each citation.

All PAS User publications

Recent additions:

Greene Burger, S., Kantor, B., Mezey, M., Mitty, E., Kluger, M., Algase, D., Anderson, K., Beck, C., Mueller, C. & Rader, J. (2009). Professional nurses involvement in nursing home culture change: Overcoming barriers, advancing opportunities. New York, NY: Hartford Institute for Geriatric Nursing.
View Abstract and Obtain Full Version

Hartnett, J.T., Morris, M. & Stengel, J. (April 2009). Creating a roadmap out of poverty for Americans with disabilities: A report on the relationship of the Employment and Training Administration’s workforce development system and local asset-building coalitions. Washington, DC: U.S. Department of Labor.
View Abstract and Obtain Full Version

Guterman, S. & Drake, H. (May 2009). The long wait: The impact of delaying Medicare coverage for people with disabilities. New York, NY: The Commonwealth Fund. Retrieved May 20, 2009 from:
http://www.commonwealthfund.org/Content/Publications/Perspectives-on-Health-Reform-Briefs/2009/May/The-Long-Wait.aspx
View Abstract and Obtain Full Version


Presentations

A list of important presentations related to the PAS Users.

All PAS Users Presentations

Recent additions:

Jans, L.H., Kraus, L.E., & Stoddard, S. (2007, November 5). Personal assistance services (PAS) cooperatives: A service delivery model to benefit PAS consumers and workers.. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Kraus, L.E., Jans, L.H., Ripple, J., & Stoddard, S. (2007, November 5). The perspectives of people with disabilities who use workplace personal assistance service. . Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Kraus, L. (2007, November 6). New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information


Links

The Center for PAS has assembled a list of links to organizations, resources and information available on the web related to PAS Users.

All PAS User links

Recent additions:

Steve Gold’s Treasured Nuggets of Information
http://www.stevegoldada.com

Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.

The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.

Accommodation and Compliance Series: The ADA Amendments Act of 2008
http://www.jan.wvu.edu/bulletins/adaaa1.htm

On January 1, 2009, the Americans with Disabilities Act (ADA) Amendments Act of 2008 went into effect, making some major changes to the way the definition of disability has been interpreted in the past. The changes apply to both the ADA and the Rehabilitation Act. Very few people argue that these changes were not needed – the courts had interpreted the definition of disability so narrowly that hardly anyone could meet it – but the challenge now is understanding what the changes are and who is covered as of January 1st. We do not yet have any regulations nor do we have any court interpretation; all we currently have are the words of the Amendments Act and its legislative history. With that said, let’s take a look at what we know so far.

Institute for Community Inclusion (ICI)
http://www.communityinclusion.org/index.html

ICI offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. Publication topics listed on the site include: employment, disability policy, finding and keeping a job, health care, social security benefits and eduction.

Of interest to those seeking employment are "Flexible funding stories" which describe funding approaches used by people with disabilities in order to obtain employment, often involving the hiring of personal assistants or job coaches in the workplace.