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Information for PAS Users

Personal Assistance Services (PAS) can be crucial to your ability to live independently. Whether you are new to PAS or have been using them for years, you may have questions or need more information.

The Center for Personal Assistance Services has gathered resources for you to find out what you need to know about Personal Assistance Services

• Guide to Using PAS How to be an employer of a Personal Assistant (PA)
• Ask Mike Send Mike your questions about Personal Assistance Services
• Web Links for PAS Users What resources are there that can help me?
• In your own words Stories from real PAS users
• Center for PAS Radio Download and listen to clips from the radio
• Help in my State How to contact the agencies in my state related to PAS
• A day in the life of Richard A video account of Richard as he moves through his day with emphasis on the assistive technology and personal assistance he uses.
• Tax Coverage of Expenses for PAS - Frequently Asked Questions

Training Resources

• Training on how to be an employer of a personal assistant

Promising Practices

Below are the promising practices relating to PAS Users.

• In the PAS Workforce
• In Workplace PAS

PAS Center Reports and Publications

A list of publications produced by the PAS Users project. The citations provide links to abstracts, press releases, and either the entire publication, or information about where to obtain it.

All PAS Center reports and publications related to PAS Users

Recent additions

LaPlante, M.P. (2010). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 10.1093/geronb/gbp129
View Abstract and Obtain Full Version

Ng, T., Harrington, C. & O’Malley, M. (November 2009). Medicaid Home and Community-Based Service Programs: Data Update. Washington, D.C.: Kaiser Commission on Medicaid and the Uninsured. Retrieved December 8, 2009, from:
http://www.kff.org/medicaid/7720.cfm
View Abstract and Obtain Full Version

Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29 1, 22-28.
View Abstract and Obtain Full Version

Library

Important publications related to PAS Users. Abstracts and information on how to obtain the complete publication is provided with each citation.

All PAS User publications

Recent additions:

Steenhausen, S. (January 2010). California’s Proposed 2010-2011 Budget: Senior-Related Program Reductions. Fact sheet, No.1. Long Beach, CA: The SCAN Foundation.
View Abstract and Obtain Full Version

National Alliance for Caregiving. (November 2009). Caregiving in the U.S. 2009: Executive Summary. Bethesda, MD: National Alliance for Caregiving. Retrieved December 17, 2009 from: http://www.caregiving.org/data/CaregivingUSAllAgesExecSum.pdf
View Abstract and Obtain Full Version

National Alliance for Caregiving. (April 2009). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: National Alliance for Caregiving. Retrieved December 17, 2009 from:
http://www.caregiving.org/data/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf
View Abstract and Obtain Full Version

Presentations

A list of important presentations related to the PAS Users.

All PAS Users Presentations

Recent additions:

Jans, L.H., Kraus, L.E., & Stoddard, S. (2007, November 5). Personal assistance services (PAS) cooperatives: A service delivery model to benefit PAS consumers and workers.. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Kraus, L.E., Jans, L.H., Ripple, J., & Stoddard, S. (2007, November 5). The perspectives of people with disabilities who use workplace personal assistance service. . Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Kraus, L. (2007, November 6). New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
More information

Links

The Center for PAS has assembled a list of links to organizations, resources and information available on the web related to PAS Users.

All PAS User links

Recent additions:

Disability.gov
http://www.Disability.gov

Disability.gov, is a redesigned federal Web site that connects more than 50 million Americans with disabilities to thousands of trusted resources on disability-related issues, programs and services. Formerly known as DisabilityInfo.gov, the site has been completely redesigned and updated with new social media tools, such as a blog and a Twitter feed, to encourage feedback and interaction among visitors. Disability.gov is not just for Americans with disabilities, but also for parents of children with disabilities, employers, workforce and human resource professionals, veterans, educators, caregivers and many others.

Funding for Long-Term Care Programs
http://www.aarp.org/research/longtermcare/programfunding/

This link provides a collection of research reports, fact sheets, speeches, news releases, congressional testimony, legal dockets and opinions on the topic of "Funding for Long-Term Care Programs".

Steve Gold’s Treasured Nuggets of Information
http://www.stevegoldada.com

Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.

The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.