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PAS Center Publications Barrett, J. (2007). Leadership Stories from Maine: The Voices of Direct-Care Workers in Culture Change. Bronx, NY: National Clearinghouse on the Direct Care Workforce, Northern New England LEADS Institute. Retrieved Dec. 9, 2007 from: Beynon, M. & Kitchener, M. (2005). Ranking the 'balance' of state long-term care systems: A comparative exposition of the SMARTER and CaRBS techniques. Health Care Management Science, Pgs. 157-166. Carder, P.C. & Hernandez, M. (2004). Consumer discourse in assisted living. Journal of Gerontology, Volume 59B(2), Pgs. S58-S67. Carpenter, G.I., Hastie, C. L., Morris, J.N., Fries, B.E. & Ankri, J. (2005). Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatrics. Center for Personal Assistance Services. (2008). How to employ a personal assistant: Emergency care. Center for Personal Assistance Services. (2008). How to employ a personal assistant: Disaster preparedness. Chapman, S., Kaye, S., & Newcomer, R. (2004) Home and Personal Care Workers by State. Published on the Center for PAS website http://pascenter.org/state_based_stats/acs_workforce_state.php Chiu, W.K. & Newcomer, R. (2007). A systematic review of nurse-assisted case management to improve hospital discharge transition outcomes for the elderly. Professional Case Management, 12, 6, 330-336. Collier, E. & Harrington, C. (2008). Staffing characteristics, turnover rates and quality of resident care in nursing facilities. Research in Gerontological Nursing, 1, 3, 157-170. Collier, E. and Harrington, C. Discharge planning, nursing home placement, and the internet. Nursing Outlook. 53(2): 95-103. Dalby, D.M., Kirdes, J.P.; Fries, B.E. (2005) Risk adjustment methods for home care quality indicators (HCQIs) based on the minimum data set for home care. BMC Health Services Research. Diwan, S., Shugarman, L.R. & Fries, B.E. (2004). Problem identification and care plan responses in a home and community-based services program. Journal of Applied Gerontology, 23, 3, 193-211. Dobell, G. & Newcomer, R. (2008). Integrated care: Incentives, approaches and future considerations. Social Work in Public Health, 23, 4, 25-47. D’Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard Times: The Effects of Financial Strain on Home Care Services Use and Participant Outcomes in Michigan. The Gerontologist, Vol. 49, No. 2, 154–165 Flores, C. and Newcomer, R. 2006. Toward a Framework for Monitoring the Quality of Care in Residential Care Facilities for the Elderly. Seniors Housing & Care Journal, 14 (1):59-72. Fries, B.E., James, M., Hammer, S.S., Shugarman, L.R., Morris, J.N. 2004. Is Telephone Screening Feasible? Accuracy and Cost-Effectiveness of Identifying Persons Medically Eligible for Home- and Community-Based Services. The Gerontologist, 44(5):680-688. Fries, B.E., Wodchis, W., Buttar, A., Blaum, C., Morris, J.N., Drabek, J. (2005). A national study showed that diagnosis varied by age group in nursing home residents under age 65. Journal of Clinical Epidemiology, 58, 2, 198-205. Gamble, M.J., Dowler, D.L., & Orslene, L.E. (2006). Assistive technology: Choosing the right tool for the right job. Journal of Vocational Rehabilitation, 24(2), 73-80. Gaugler, J.E., Kane, R.L. & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62, 1, 38-44. Gaugler, J.E., Kane, R.L., Kane, R.A. & Newcomer, R. (2006). Predictors of institutionalization in Latinos with dementia: a cross-cultural analysis. Journal of Cross-Cultural Gerontology, 21, 3-4, 139-155. Grossman, B., M. Kitchener, J. Mullan, and C. Harrington. 2007. Paid Personal Assistance Services: An Exploratory Study of Working Age Consumers' Perspectives. Journal of Aging and Social Policy, 19 (3): 27-45. Harrington, C. (2005). Nursing staffing in nursing homes in the United States: Part I. Journal of Gerontological Nursing, 31, 2, 18-23. Harrington, C. (2005). Nursing staffing in nursing homes in the United States: Part II. Journal of Gerontological Nursing, 31, 3, 9-15. Harrington, C. & Ng, T. (March 2009). Medicaid Home and Community-Based Services Data, 2005. Published on the Center for PAS website: http://pascenter.org/medicaid/index.php Harrington, C. (2005). Long Term Care Staff and Quality of Care. Published on the Center for PAS website. Harrington, C. and Kang, T. (2008) Disparities in service utilization and expenditures for individuals with developmental disabilities. Disability and Health Journal. Volume 1, Issue 4, October 2008. Harrington, C., & O'Meara, J. (2007) Snapshot: The Changing Face of California's Nursing Home Industry. California HealthCare Foundation, Oakland, CA. Harrington, C., and O'Meara, J. (2005). Snapshot: California's Fragile Nursing Home Industry. California Healthcare Foundation, Oakland, CA. Harrington, C., Anzaldo, S., Burdin, A., Kitchener, M. and Miller, M. 2005. Trends in State Certificate of Need and Moratoria Programs for Long Term Care Providers. Journal of Health and Social Policy, 19 (2):31-58. Harrington, C., Beverly, C.J., Maas, M.L., Buckwalter, K.C., Bennett, J.A., Young, H.M., Sochalski, J., and Naylor, M. (2006). Influencing health policy for older adults: Initiatives by the John A. Hartford Centers of Geriatric Nursing Excellence. Nursing Outlook, 54, 4, 236-242. Harrington, C., Carrillo, H., & LaCava, C. (2006). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 1999 through 2005. University of California, San Francisco. Harrington, C., Carrillo, H., & Mercado-Scott, C. (2005). Nursing facilities, staffing, residents, and facility deficiencies, 1998 through 2004. University of California, San Francisco. Harrington, C., Chapman, S., Miller, E., Miller, N., and Newcomer, R. (2005). Trends in the supply of long-term-care facilities and beds in the United States. Journal of Applied Gerontology 24(4) 265-282. Harrington, C., Kang, T. & Chang, J. (April 2009). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities: Vol. 47, No. 2, pp. 108–124. Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality. University of California, San Francisco. Published on the Center for PAS website. Harrington, C., Ng., T., Kaye, H.S. & Newcomer, R.J. (2009). Medicaid home and community based services: Proposed policies to improve access, costs, and quality. Public Policy & Aging Report, 19, 2, 13-18. Harrington, C., O'Meara, J., Tsoukalas, T., & Ng, T. (2007) Snapshot: Long Term Care, Facts and Figures. California HealthCare Foundation, Oakland, CA. Harrington, C., O’Meara, J. (2004). Report on California's Nursing Homes, Home Health Agencies, and Hospice Programs Prepared for the California HealthCare Foundation for California Nursing Home Search - www.calnhs.org. Retrieved from the Center for PAS website http://pascenter.org/documents/CCIS_Overview.pdf Harrington, C., O’Meara, J., Collier, E., Kang, T., Stephens, C. & Chang, J. (2008) Impact of California's Medi-Cal Long Term Care Reimbursement Act On Access, Quality and Costs. Published on the Center for PAS website. Harrington, C., Swan, J.H., and Carrillo, H. 2007. Nursing Staffing and Medicaid Reimbursement Rates. Health Services Research, 42 (3): 1105-1129. Harrington, C., Tsoukalas, T., Rudder, C., Mollot, R.J., and Carrillo, H. (2008). Variation in the use of federal and state civil money penalties for nursing homes. Gerontologist, 48, 5, 679-691. Hendricks, D.J., Batiste, L.C., Hirsh, A.E., Schartz, H.,A Blanck, P. 2005. Cost and Effectiveness of Accommodations in the Workplace: Preliminary Results of a Nationwide Study. Disability Studies Quarterly, 25(4), http://www.dsq-sds.org/2005_fall_toc.html Hernandez, M. & Newcomer, R. (2007). Assisted living and special populations: What do we know about differences in use and potential access barriers? Gerontologist, 47, Special Issue 3, 110-117. Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=265010 Holland, S.K., Greenberg, J., Tidwell, L., Malone, J., Mullan, J. & Newcomer, R. (2005). Community based health coaching and its effect on exercise and health service utilization. Journal of Aging & Health, 17, 6, 697-716. Jacobs, A. E.,Hendricks, D. J. (1992) Job accommodations for adults with learning disabilities: Brilliantly disguised opportunities.Learning Disability Quarterly. 15(4) 274-285. Jans, L. & Kraus, L. 2007. Personal Assistance Services (PAS) Cooperatives: An Annotated Bibliography. Jans, L., & Scherer, M. (2006). Assistive technology training: Diverse audiences and multidisciplinary content. Disability and Rehabilitation: Assistive Technology, 1(1-2), 69-77. Jans., L. (November, 2007). Personal Assistance Services (PAS) Cooperatives: Final Report. Center for Personal Assistance Services. Job Accommodation Network, Center for Personal Assistance Services (2004). Personal Assistance Services (PAS) in the Workplace. Retrieved July 7, 2004 from http://www.jan.wvu.edu/media/PAS.html. Kang, T., & Harrington, C. 2008. Variation in types of service use and expenditures for individuals with developmental disabilities. Disability and Health Journal 1(2008) 30-41. Kaye, H.S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19, 2, 115-128. Kaye, H.S., Chapman, S., Newcomer, R.J. & Harrington, C. (2006). The personal assistance workforce: Trends in supply and demand. Health Affairs, 25, 4, 1113-1120. Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29, 1, 11-21. Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs 28, no. 1 (2009): 262–272. Kaye, H.S., Neri, M. & Wong, A. (July 2009). Telecommunication needs of Californians with disabilities: Final Report. San Francisco, CA: UCSF Disability Statistics Center. Kaye, H.S., Yeager, P., & Reed, M. 2009. Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), 194-203. Kitchener M., Beynon, M., & Harrington, C. (2004). Explaining the Diffusion of Medicaid Home Care Waiver Programs Using VPRS Decision Rules. Healthcare Management Science 7/3: 237-244. Kitchener, M, Hernandez, M, Ng, T, & Harrington, C (2006). Residential Care Provision in Medicaid Home and Community Based Waivers: A National Suty of Program Trends. The Gerontologist, 46, 165-172. Kitchener, M. and Harrington, C. 2004. The U.S. Long Term Care Field: A Dialectic Analysis of Institution Dynamics. Journal of Health and Social Behavior, 45 (Supplement 1): 87-101. Kitchener, M., Bostrom, A., & Harrington, C. (2004) Smoke Without Fire: Nursing Facility Closures, 1997-2001. Inquiry 41/2: 189-202. Kitchener, M., Carrillo. H., & Harrington, C. (2004). Medicaid Community-Based Programs: A Longitudinal Analysis of State Variation in Expenditures and Utilization. Inquiry, 40, 375-389. Kitchener, M., Ng, T. and Harrington, C. 2007. State Medicaid Home Care Policies: Inside the Black Box. Home Health Care Quarterly, 26 (3): 23-38. Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008) Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist 48:181-189 (2008). Kitchener, M., Ng, T., & Harrington, C. (2004) Medicaid 1915(c) Home and Community Based Services Waivers: A National Survey of Eligibility Criteria, Caps and Waiting Lists. Home Health Care Services Quarterly 23/2: 55-69. Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19 (3): 9-26. Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid Home and Community-Based Services for the Elderly: Trends in Programs and Policies. Journal of Applied Gerontology, 26 (3): 303-324. Kitchener, M., Ng, T., Carrillo, H. and Harrington, C. 2007. A Longitudinal Analysis of State Variation in the Provision of Personal Care Services. Inquiry. In press. Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry 44, 69-87. Kitchener, M., Ng, T., Grossman, B., & Harrington, C. (2005) Medicaid Waiver Programs for Traumatic Brain and Spinal Cord Injury. Journal of Health and Social Policy 20/3: 51-66 Kitchener, M., Ng, T., Miller, N. & Harrington C. (2006). Institutional and community-based long-term care: A comparative estimate of public costs. Journal of Health & Social Policy, Vol. 22(2): 31-50. 2006. Kitchener, M., Ng, T., Miller, N., & Harrington, C. (2005). Medicaid Home And Community-Based Services: National Program Trends. Health Affairs. 24(1) 206-212. Kitchener, M., O’Meara, J., Brody, A., Lee, H.Y., Harrington, C. (2007). Shareholder Value and the Performance of a Large Nursing Home Chain. Health Services Research. In press. Kitchener, M., Willmott, M. & Harrington, C. (11/2004). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website: http://pascenter.org/demo_waivers/demoWaiverReport_2004.php Kitchener, M., Willmott, M., & Harrington, C. (11/2004). Home and Community-Based Service Programs: Selected Robert Wood Johnson Foundation Grants to States. Published on the Center for PAS website: http://www.pascenter.org/foundation_grants/index.php Kitchener, M., Willmott, M., Alameida, M., Wong, A. and Harrington, C. (2008). Introduction to Olmstead Lawsuits and Olmstead Plans. Retrieved from http://pascenter.org/olmstead/index.php Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Federal Systems Change Grants to States and Territories: 2001-2005. Retrieved from http://pascenter.org/systemschange/index.php Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website. http://pascenter.org/demo_waivers/demoWaiverReport_2006.php Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (4/2007). Home and Community-Based Services: Federal Funding to States. Published on the Center for PAS Website: http://www.pascenter.org/federal_funding_to_states/ Kitchener, M., Willmott, M., Wong, A., & Harrington, C. (December 2006) Medicaid Managed Long-Term Care: An Introduction. Kitchener, M., Wong, A., Willmott, M. & and Harrington, C. (2/2007). Home & Community-Based Services: State-Only Funded Programs. Published on the Center for PAS website: http://pascenter.org/state_funded/index.php Koehler, M., Rabinowitz, T., Hirdes, J., Stones, M., Carpenter, G.I., Fries, B.E., Morris, J.N., Jones, R.N. (2005). Measuring depression in nursing home residents with the MDS and GDS: An observational psychometric study. BMC Geriatrics. LaPlante, M., Kaye, H.S., Kang, T., and Harrington, C. (2004). Unmet need for personal assistance services: Estimating the shortfall in hours of help and adverse consequences. J. Gerontol. B. Psychol. Sci. Soc. Sci. 2004 59: S98-S108. LaPlante, M.P. (2010). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 10.1093/geronb/gbp129 LaPlante, M.P., Harrington, C., & Kang, T. (2002). Estimating paid and unpaid hours of personal assistance services in activities of daily living provided to adults living at home. Health Services Research, 37(2): 397-415. LaPlante, M.P., Kaye, H.S. and Harrington, C. 2007. Estimating the Expense of a Mandatory Home- and Community-Based Personal Assistance Services Benefit Under Medicaid. Journal of Health and Social Policy, 19 (3): 47-64. Li, L.W. and Fries, B.E. 2005. Elder Disability as an Explanation of Racial Differences in Informal Home Care. Gerontologist, 45(2): 206-215. Miller, N.A. 2005. State Strategies to Support Community Based Long Term Care, Journal of Health and Social Policy, 20 (4): 1-30. Miller, N.A. and Weinstein, M. 2007. Participation and Knowledge Related to a Nursing Home Admission Decision among a Working Age Population. Social Science & Medicine, 64 (2):303-313. Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, Vol. 65, No. 3, 338-355 (2008) Miller, NA, Elder, KT, Rubin, A, Kitchener, M, & Harrington, C (2006). Strengthening Home and Community Based Care Through Medicaid Waivers. Journal of Aging & Social Policy, 18, 1-16. Miller, NA, Kitchener, M, Elder, KT, Kang, Y, Rubin, A, & Harrington, C (2005). Variation by Disability in State Predictors of Medicaid 1915c Waiver Use and Expenditures. The Gerontologist, 45, 764-772. Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76, 1, 22-27. Misra, S., Orslene, L.E., & Walls, R.T. 2007. Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3), http://www.dsq-sds.org/2007_summer_toc.html Mitchell, S.L., Morris, J.N., Park, P.S. & Fries, B.E. (2004). Terminal care for persons with advanced dementia in the nursing home and home care settings. Journal of Palliative Medicine, 7, 6, 808-816. Morris, J.N., Jones, R.N., Fries, B.E., Hirdes, J.P. (2004). Convergent validity of minimum data set-based performance quality indicators in postacute care settings. American Journal of Medical Quality, 19, 6, 242-247. Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28, 1, 24-44. Nallamouthu, B.K., Rogers, M.A.M., Saint, S., McMahon, L.J., Fries, B.E., Kaufman, S.R. & Langa, K.M. (2005). Skilled care requirements for elderly patients following coronary artery bypass grafting. Journal of the American Geriatrics Society, 53, 7, 1133-1137. Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M, (2009). The Future of Health Insurance for Children With Special Health Care Needs Newcomer, R. T. Clay, K. Yaffe, K. Covinsky. 2005. Medicare Expenditures at the End of Life for Persons with Dementia. Journal of the American Geriatric Society, 53 (11): 2001-2006. Newcomer, R., Graham, C.G., Sotelo, E., Anderson, L. (2004) Nursing Home Transition: Implementing the Program Providing Assistance to Caregivers in Transition (PACT) Published on the Center for PAS website. Newcomer, R., Kang, T., LaPlante, M., and Kaye, S. (2005). Living quarters and unmet need for personal care assistance among adults with disabilities. Journal of Gerontology: Social Sciences, 60B(4): S205-S213. Newcomer, R., T. Kang, C. Graham. 2007. Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46: 385-390. Newcomer, R.J., Covinsky, T., Clay, K., and Yaffe, K. 2003. Predicting 12-Month Mortality for Persons with Dementia. Journal of Gerontology: Social Sciences, 58(3):S187-S198. Ng, T., Harrington, C. & O’Malley, M. (November 2009). Medicaid Home and Community-Based Service Programs: Data Update. Washington, D.C.: Kaiser Commission on Medicaid and the Uninsured. Retrieved December 8, 2009, from: Ng, T., Harrington, C., and O’Malley, M. 2008. Medicaid Home and Community Based Service Programs: Data Update. December.Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29 1, 22-28. Ng, T., Kitchener, M., and Harrington, C. (2005). Medicaid Home Care Waivers for Persons with HIV/AIDS: Program Expenditures, Participants and Policies. AIDS and Public Policy Journal 19/3,4: 95-109 Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. Understanding Factors Associated with Work Loss for Families Caring for CSHCN. PEDIATRICS Vol. 124 Supplement December 2009. O’Meara, J., Kitchener, M., Collier, E., Lyons, M., Billwiller-Kiss, A., Simon, L.P. & Harrington, C. (2005). Development of and stakeholder responses to a nursing home consumer information system. American Journal of Medical Quality, 20, 1, 40-50. Paraprofessional Healthcare Institute. (December 2008). Michigan’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute. Paraprofessional Healthcare Institute. (March 2009). Vermont’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute. 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Payer incentives and physical rehabilitation therapy for nonelderly institutional long-term care residents: Evidence from Michigan and Ontario. Archives of Physical Medicine and Rehabilitation , Volume 85(2) , Pgs. 210-217. Wodchis, W.P., Teare, G.F., Naglie, G., Bronskill, S.E., Gill, S.S., Hillmer, M.P., Anderson, G.M., Rochon, P.A.; Fries, B.E. (2005). Skilled nursing facility rehabilitation and discharge to home after stroke. Archives of Physical Medicine and Rehabilitation , Volume 86(3) , Pgs. 442-448. Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services. Wong, A., Kaye, H.S. and Newcomer, R. (2007, July). State legislation regarding wages and benefits of home care workers: Thirteen promising practices. San Francisco: Center for Personal Assistance Services. Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. 2007. 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