The American Association of Retired Persons is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 and older. AARP’s Research Center provides information on Independent Living topics such as housing, transportation, technology, and family relations.
This website offers solutions and ideas for people with many kinds of disabilities who find using a computer difficult, maybe even impossible. This website will direct you to adaptive equipment and alternative methods available for using computers.
This is a website from the government that collects information on assistive technology for people with disabilities
AgeSource Worldwide is a website that provides reading lists, other websites and resources on the subject of aging in North American and Europe. It contains almost 300 information sources in 26 countries.
This organization’s mission is to be a bridge between consumers and researchers and professionals about aging. The website advocates for seniors and has information on health problems such as diabetes, falls, and geriatrics.
The American Geriatrics Society (AGS) Foundation for Health in Aging (FHA) is a national non-profit organization established in 1999 by The American Geriatrics Society. The foundation aims to build a bridge between the research and practice of Geriatrics and the Public, and to advocate on behalf of older adults and their special health care needs. The website has information on common health problems such as diabetes, falls, etc. and educational materials on geriatrics.
This section helps consumers learn about the different types of living arrangements that are available, how to deal with the emotional stresses of caregiving, how to plan for long-term care costs, and how to get involved in aging services.
American Association of People with Disabilities (AAPD)
http://www.aapd-dc.org
AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities.
The largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities.
American Association on Health and Disability
http://www.aahd.us/
One of the missions of the American Association on Health and Disability is to promote health and wellness of people with disabilities. The website has information, resources, and a newsletter for consumers on prevention and wellness.
American Disabled for Attendant Programs Today (ADAPT)
http://www.adapt.org/
ADAPT is an organization at the forefront of activism regarding issues facing people with disabilities such as consumer direction of Personal Assistance Services in the community.
This website from the Red Cross gives suggestions on how to prepare for emergencies and natural disasters for people who have physical, visual, auditory, or cognitive disabilities.
The Arc is a national organization of and for people with mental retardation and related developmental disabilities and their families.
Association of Programs for Rural Independent Living (APRIL)
http://www.april-rural.org/
The Association of Programs for Rural Independent Living (APRIL) is a national network of rural independent living centers and individuals concerned with the unique aspects of rural independent living.
Association on Higher Education and Disability
http://www.ahead.org
This website contains a lot of information for people with disabilities interested in going to school after high school. The web site offers many helpful links to different universities and programs, and to information on a range of specific disabilities.
The Bazelon Center advocates for people with mental disabilities and writes reports on legal issues facing people with disabilities such as the Olmstead case.
This website helps older adults find out what programs are available to them.
This website provides the latest news about the different health care programs in California. For people with disabilities in California, the website has reports and papers on Medi-Cal and other home and community based services.
The California Nursing Home Search website is for residents of California who are looking for information about the quality of nursing and intermediate care facilities in the state.
From the Department of Labor, Career One Stop is a collection of tools that can help you find a job, learn more about careers, and find employment services in your area.
The Carework Network is an international organization of researchers, policymakers, and advocates involved in various domains of care work. Based in the social sciences, individuals from all academic disciplines and advocacy organizations who take various approaches to the study of care work and care work policy are invited to participate in the Carework Network.
At this time the network does not have an official membership list or dues structure. Participation is through the listserv and annual meetings and conferences held in conjunction with meetings of the American Sociological Association. The governance of the network rests in an eight member steering committee.
Carework research and policy focus on the caring work of individuals, families, communities, paid caregivers, social service agencies, and state bureaucracies, and ask important questions about such matters as:
- how women's labor force participation has affected the nature and scope of women's and men's caring work;
- how identities influence carework;
- how inequality based on gender, race/ethnicity, sexual orientation, and other factors relates to caring;
- how caring work is recognized and compensated;
- how various state welfare policies the distribution of carework;
- and whether and to what extent citizens have a right to receive, and a duty to provide, care.
Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech
http://www.catea.org
CATEA supports individuals with disabilities of any age within the State of Georgia and beyond through: expert services, research, design and technological development, information dissemination, and educational programs. The application of these resources is intended to promote maximum access to opportunity and environments by enhancing individuals' capabilities through the appropriate use of technology.
The Center for Health Care Strategies collects and shares information about home and community-based services (HCBS) for people with disabilities from different states.
The Center for Home Care Policy and Research has become recognized as the pre-eminent research center for home care and is the only of its kind in the nation.
DBTACs are regional centers that provide information, training, and technical assistance to employers, people with disabilities, and others with responsibilities under the ADA.
To find US and state resources for employment of people with disabilities, the Center has a directory of government agencies you can locate by state.
To find US and state resources related to Personal Assistances Services, the Center has a directory of government agencies you can locate by state.
The Center, an affiliate of the National Association of State Medicaid Directors (NASMD), is a technical assistance center that is dedicated to helping states enhance employment support programs. One of the Center’s six task forces addresses current rules and regulations for workplace PAS, factors in the work place, and related concerns. Minutes of task force meetings, beginning in January 2003, as well as a small list of publications on workplace PAS are available.
State-by-state data on the Medicaid Buy-In eligibility rules, enrollment number, program design, and contact information. Federal level information on Medicaid waiver programs. State-by-state Medicaid Infrastructure Grant activities pages describe changes or improvements to states’ PAS programs, if such modifications are covered under the MIG.
Centers for Medicare and Medicaid Services (CMS)
http://www.cms.hhs.gov
Several links within this site related to Home and Community-Based PAS:
http://www.cms.hhs.gov/medicaid/consumerag.asp This site provides information on the Medicaid program, federal grants, initiatives and programs for disabled and aging populations. State-by-state data on federal programs, grants and promising practices (such as HCBS waiver programs) are available from this site. This site links to:
http://www.cms.hhs.gov/newfreedom/ Information on the federal New Freedom Initiative (NFI) which aims to develop community integration of people with disabilities. Includes reports on programs and grants to; develop state long-term care services, improve the direct service community workforce and promote the employment of people with disabilities.
http://www.cms.hhs.gov/olmstead/ Information on the Federal response to Olmstead, state obligations under the ADA and advisory letters to states.
http://www.cms.hhs.gov/medicaid/msis/mstats.aspWebsite of CMS that has Medicaid Program Statistics (MSIS) data dating from 1990. Participant and Expenditure data on most Medicaid programs are retrievable by state and US.
http://www.cms.hhs.gov/manuals/45_smm/
sm_02_2_2700.6_to_2700.6.asp#_toc490132956This page of the CMS website deals specifically with the federal regulations for federal state Medicaid 1915(c) HCBS waivers. It provides guidelines of why waivers must be administered in certain way and also sets the guidelines of how the expenditure amount and number of participants may be calculated.
State-by-state data on the Medicaid Buy-In eligibility rules, enrollment number, program design, and contact information. Federal level information on Medicaid waiver programs. State-by-state Medicaid Infrastructure Grant activities pages describe changes or improvements to states’ PAS programs, if such modifications are covered under the MIG.
This site from the Centers for Medicare and Medicaid Services (CMS) lists various programs and agencies that cover disability and aging issues such as information on home and community based services, waiver programs by state, and programs for people with disabilities to work and keep Medicaid.
The DCA is a unique coalition of consumers, workers, and concerned providers dedicated to ensuring a stable, valued and well-trained workforce in long-term care.
Centers for Independent Living (CILs) are advocacy organizations run by and for people with disabilities. This website from the MetroWest Center for Independent Living has a directory of all CILs by state.
Launched in late 2003, this web site of the World Institute on Disability features a section on workplace PAS. This section presents practical information for employers or consumers, including frequently asked questions, policy updates publications list, and more.
Disability Rights Education and Defense Fund, Inc. - (DREDF)
http://www.dredf.org
DREDF is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities.
Disability World is an online magazine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities.
This web site contains links to the federal government's resources and information that are of interest to people with disabilities, their families, employers, services providers, and other community members.
This website gives information for people with disabilities about how to prepare for a disaster such as an earthquake (grade level 12).
Disabled Sports USA is an organization that offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.
A project of the University of Washington that promotes success in academics and careers for individuals with disabilities and sponsors programs on assitive technology.
The Employer Assistance & Recruiting Network (EARN) is a free service that connects employers looking for quality employees with skilled job candidates. This web site is a source of disability employment information including:
• recruiting services
• tools and resources
• employer success stories
• business case for hiring people with disabilities
Eldercare Locator: Community Assistance for Seniors
http://www.eldercare.gov/
This organization helps older adults and the people who take care of them find services and support.
Equal Access to Software and Information (EASI)
http://www.easi.cc
EASI provides information and guidance to students with disabilities on adaptive software and technology used in schools.
Families USA is a grassroots website for consumers about all kinds of health care coverage. They have several reports on various Medicaid programs and ideas on how to advocate for each state.
This website provides information, guides and factsheets for caregivers in English, Spanish, and Chinese.
Federal Emergency Management Administration: Disaster Preparedness for People with Disabilities
http://www.fema.gov/library/disprepf.shtm
The Federal Emergency Management Administration (FEMA) offers these suggestions to keep in mind when making emergency preparations addressing people with disabilities.
The Center for Health Services Research and Policy has published briefings on the implications of the Olmstead case, with a focus on the legal meaning of the decision and subsequent interpretations of the ruling. This site also provides research reports published from a project analyzing the Olmstead case and subsequent litigation.
These reports highlight promising pracices in home and community-based services offered by states to enable persons of any age who have a long-term illness or disability to live in the most integrated community setting appropriate to their individual support requirements and preferences.
Health Care for Health Care Workers
http://hchcw.org
An initiative from the Paraprofessional Healthcare Institute, Health Care for Heath Care Workers aims to bring public attention to the crisis facing tens of thousands of direct-care workers who assist millions of Americans with age-related and other disabilities but lack coverage themselves.
Iowa CareGivers Association (ICA) is Iowa's first independent statewide professional association for Certified Nurse Assistants, Home Care Aides, Patient Care Technicians, and other direct care/support workers who deliver 80-90% of the care in Iowa's nursing facilities, home care agencies and in many other health care settings
A disability policy consultant, June Isaacson Kailes’ website has an extensive collection of disaster preparedness and emergency resources for people with disabilities.
Statistics on the number of nursing home residents, residents by primary payer source, nursing homes, nursing homes by ownership type, and nursing home beds nationwide have been updated by the University of California at San Francisco. These and other data are available on the Kaiser Family Foundation's State Health Facts.org website. This link leads directly to nursing home data. The general link above leads to further state data.
Maine Personal Assistance Services Association
Maine PASA is an association that promotes professionalism and development for the direct care, direct support and personal assistance workforce to support the highest quality of life for elders and people with disabilities.
This web site will reveal different web sites that provide information that the elderly or disabled may require. The Home Page reveals a listing of web sites and files that give additional information concerning an elderly topic. The Government Agencies page exposes Federal and State Agencies that provide either goods or services to the elderly or disabled. The Service Providers page lists private company names, addresses, telephone numbers, E-Mails, Web Site and special information for companies that provide either products or services to the elderly.
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
National Association for Home Care and Hospice
http://www.nahc.org
The National Association for Home Care and Hospice website has a section for consumers on how to choose a home care provider and a locator tool to find home care and hospice agencies.
The National Association of Area Agencies on Aging (n4a) is the umbrella organization for the 655 area agencies on aging (AAAs) and more than 230 Title VI Native American aging programs in the U.S. Through its presence in Washington, D.C., n4a advocates on behalf of the local aging agencies to ensure that needed resources and support services are available to older Americans.
National Association of State Units on Aging
http://www.nasua.org/
This website contains links to departments in each state that deals with services for seniors and people with disabilities. It also provides reports on home and community based services and Medicaid waivers. See the Center for Personal Assistance Services’s state data on Medicaid 1915 (c) HCBS waivers.
The Aging Activities Group of the NCHS performs research and analysis and disseminates data on the health and health care utilization of aging Americans.
The link is to a page with a collection of data tables providing information on trends of health and health care use by older Americans and a family of surveys designed to measure changes in health status, health-related behaviors, health care utilization, and the causes and consequences of these changes within and across two cohorts of elderly Americans.
National Center for Learning Disabilities
http://www.ncld.org
The National Center for Learning Disabilities provides information to parents, professionals and people with learning disabilities and supports programs that help people learn more effectively.
National Center on Physical Activity and Disability
http://www.ncpad.org/
The National Center on Physical Activity and Disability believes being physically active is good for everybody. This website has guidelines to consider before starting any kind of exercise program plus factsheets on many activities, games, and sports that have been adapted for people with disabilities.
National Center on Secondary Education and Transition (NCSET)
http://www.ncset.org
The National Center on Secondary Education and Transition (NCSET) gives technical assistance and provides information related to school after high school and other transition issues for youth with disabilities.
The National Center on Workforce and Disability/Adult (NCWD) provides training, technical assistance, policy analysis, and information to improve access for all in the workforce system. This section includes resources for people with disabilities who are seeking jobs.
National Clearinghouse on Postsecondary Education for Individuals with Disabilities, The HEATH Resou
http://www.heath.gwu.edu/
The HEATH Resource Center provides information about educational support services, policies, procedures, adaptations, and opportunities for people with disabilities in the United States.
The National Clearinghouse on the Direct Care Workforce tracks national and state policies that relate to the PAS workforce. Information for consumers of Personal Assistance Services can be found on their Consumer Direction section of the Direct Care Clearinghouse web site.
Summaries of publications on disability and employment can be sorted according to 5 classes of users: Administrators, Employer/Business, Youth Service Practitioners, Policymakers, and Youth or Family. Outlines of disability-related legislation highlight eligibility requirements and services they provide."What’s New" section features briefs on current employment-related topics.
The NCHSD supports a working group of state, local and federal administrators who meet regularly to discuss personal assistance services, funding options, policy design, data collection, and the expansion of PAS into the workplace. Participation is open to consumers, employers, and other stakeholders.
The National Council on Disability writes reports about some of the major laws that affect people with disabilities such as benefits, access to housing and the right to live in the community.
The National Direct Service Workforce (DSW) Resource Center supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.
For people who have family members as caregivers, this website gives tips and advice for families and caregivers.
Policy reports, networking and information aimed at State Governors covering 5 broad topic areas, which include healthcare. Center for Best Practices also disseminates information on initiatives in different states across the 5 topics. Briefings on Medicaid and disability-related issues such as Olmstead and Ticket to Work are available.
The National Health Policy Forum is a participant-driven, nonpartisan information exchange program that works to foster more informed government decision-making.
The National Organization on Disability (N.O.D.) provides the latest in disability news, information, and resources. The website is organized in categories of community involvement, economic participation, and access to independence for people with disabilities.
National Program Office on Self-Determination provides links, articles, and message boards on self-determination, as well as articles on personal care assistants.
National Resource Center on Supportive Housing and Home Modification
http://www.homemods.org
A project of the University of Southern California Andrus Gerontology Center, this resource center has an online direcoty of home modifications resources. It is also the home to another project titled "Caregiver Adaptations to Reduce Environmental Stress" aimed at increaing caregiver use of environmental coping strategies to reduce physical burden and strain.
The National Senior Citizen’s Law Center advocates for seniors and has information on cases related to Medicaid, waiver programs and nursing facilities.
Federal Government’s informational site for people with disabilities about the New Freedom Initiative. Information is divided by categories such as health, civil rights, independent living and employment.
The North Carolina Office on Disability and Health lists several publications available from their website on access to health care for people with disabilities. Women’s health, removing barriers, physical activity, health and wellness are some of the subjects covered in the publications.
Personal Assistance Services (PAS) in the Workplace - Job Accommodation Network
http://www.jan.wvu.edu/media/PAS.html
This website is for seniors interested in having more control over their own care. It gives a definition of consumer direction and a toolkit to helps figure out which state programs support consumer direction.
Proyecto Visión connects disabled Latinos with employment services and related resources by offering a bilingual website, newsletter and technical assistance hotline plus outreach to employers in the community.
Ready.gov is the Department of Homeland Security’s public website on emergency preparedness. The section on making an emergency kit includes checklists for special needs items for infants, the elderly, and people with disabilities.
Rehabilitation Research Training Center (RRTC) on Health and Wellness
http://www.healthwellness.org
The Health Information section of the RRTC on Health and Wellness has information for consumers on physical activity, nutrition, well-being, managed care, alternative medicine, and other subjects.
RewardingWork.org is an online direct care job registry connecting
employees and employers in Connecticut, Massachusetts and New
Jersey.
The Service Employees International Union is 1.8 million working
people and 50,000 retirees united to improve services and our
communities throughout North America. It is the largest health care
union, with 900,000 members in the field, including nurses, LPNs,
doctors, lab technicians, nursing home workers and home care workers.
Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits. This data is approximately one year old when it is posted.
Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits. This data is approximately one year old when it is posted.
A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE).
A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE).
Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.
The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.
Created by a disability rights attorney, Steve Gold’s website gives the latest legal information and research about issues for people with disabilities such as housing, education, nursing homes, health care, and the Americans with Disabilities Act.
TASH is a civil rights organization that works to include people with disabilities into every aspect of society.
Through the Looking Glass (TLG) is an organization that helps families in which a child, parent or grandparent has a disability by providing information and services on how to help families adapt to various disabilities.
U.S. Department of Justice, Americans with Disabilities Act
http://www.ada.org
This website provides information on the Americans with Disabilities Act that describe the rights of people with disabilities, employers and other public groups and buildings.
The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources.
The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources.
Virginia Commonwealth University. Publishes reports and manuals on obtaining or managing workplace personal assistance services. Among them, Personal Assistance in the Workplace: A Customer-Directed Guide, 2003, (http://www.worksupport.com/Main/pass.asp) and Employer View of Workplace Supports (http://www.worksupport.com/Main/rrtcpapers.asp)
