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Table of Contents

1. Introduction.

2. References.

3. Table of State Grants.

4. Download PDF of entire report.

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Home and Community-Based PAS > Reports > Federal Systems Change Grants to States and Territories: 2001-2004

Federal Systems Change Grants to States and Territories: 2001-2004

Martin Kitchener, Micky Willmott & Charlene Harrington,
UCSF Center for Personal Assistance Services

May 2004

References

  1. For more details on the New Freedom Initiative, go to http://www.whitehouse.gov/infocus/newfreedom/ or http://www.hhs.gov/newfreedom/.
  2. For further information on the Americans with Disabilities Act (1990), go to http://www.ada.gov.
  3. Olmstead v. L.C. (98-536) 527 U.S. 581 (1999), the Supreme Court ruling is available at: http://supct.law.cornell.edu/supct/html/98-536.ZS.html.
  4. Executive Order 13217: Community-based Alternatives for Individuals with Disabilities. (June 18 2001). Available at http://www.whitehouse.gov.news/releases/2001/06/print/20010619.html
  5. Delivering on the Promise: A Compilation of Individual Federal Agency Reports of Action to Eliminate Barriers and Promote Community Integration. (http://www.hhs.gov/newfreedom/final/) This report covers the Departments of; Justice, Labor, Health & Human Services, Housing & Urban Development, Transport, Education and Veterans Affairs, as well as the Office of Personnel Management and the Social Security Administration.
  6. The first $50 million Systems Change Grants proposal was under the Clinton administration and was secured following the efforts of lobbyists suggesting $1million per state for systems change (correspondence from Blue Ribbon Advisory Committee member, 24th April 2004).
  7. Administration on Aging grants which might support state’s efforts to increase community integration include grants for; Home and Community-based Care, Alzheimer’s Disease Research and Demonstrations, Caregiving, Family/informal caregiving and Informal caregiving. A compendium of grants awarded by the AoA in FY2002 is at: http://www.aoa.gov/doingbus/comp/FY2002%20Compendium.pdf most of these grants were awarded under the Older Americans Act.
  8. For several years, the HRSA has awarded grants for Traumatic Brain Injury (TBI) through the Maternal and Child Health Bureau. These grants aim to help states better plan their infrastructure for helping people who have sustained a TBI. Further information on these grants is available in the Federal Register/ volume 66, No.111/ Friday June 8, 2001/ Notices (page 30937), available at: http://www.gpoaccess.gov/fr/index.html
  9. SAMHSA have a ‘Community Action Grant’ program that has been running since before 1999. This program can cover people with mental health problems or people with substance use problems. SAMHSA has also developed a networking resource for states developing more integrated services for people with mental health problems. Further information about the ‘Olmstead Community’ is available at: (http://www.olmsteadcommunity.org).
  10. Further information on the work of the HUD regarding the new Freedom Initiative is available at http://www.hud.gov/groups/disabilities.cfm.
  11. An example of the activities undertaken by the Department of Labor is the ‘Home Modification Grants’ which were administered via the Faith-based and Community Initiative in collaboration with the HUD. They were awarded to 8 states to help local faith-based and community organizations to assist individuals with disabilities to remain in their own homes. Further details are available from: http://www.dol.gov/odep/media/press/recip.htm.
  12. The 2004 Progress Report on the New Freedom Initiative provides a summary of the activities of each of the key departments involved in ensuring compliance with the ADA. The report, The New Freedom Initiative: A Progress Report, March 2004 (by the White House Domestic Policy Council) is available at: http://www.whitehouse.gov/infocus/newfreedom/newfreedom-report-2004.pdf
  13. For more information on ‘Ticket to Work’ and Medicaid Infrastructure Grants (FY2003), go to: http://www.cms.hhs.gov/twwiia/default.asp. For information on Direct Service Community Workforce Grants (FY2003), go to: http://www.cms.hhs.gov/newfreedom/dsw03.pdf
  14. The Health Care Financing Administration (now known as the CMS) had administered a grant scheme in 1998, 1999 and 2000 that was a precursor to the larger Systems Change Grant program and gave awards to 12 states. The competitive grants aimed to foster state infrastructures to enable individuals to live in the community by either transitioning people out of nursing homes or diverting unnecessary nursing home admission. Texas, Michigan, Colorado and Rhode Island received $187,500 each in what were called ‘Date Certain Grants’ in 1998. The grants were called ‘Nursing Home Transition Grants’ in 1999 and 2000 and focused entirely on moving people out of nursing homes. Awards in both years were approximately $500,000 and went to New Jersey, Vermont, New Hampshire, Wisconsin (1999), Pennsylvania, Arkansas, Nebraska and Florida (2000). (Information from the CMS at: http://www.cms.hhs.gov/medicaid/services/nhtgrant.asp)
  15. Federal Register/ volume 68, No.104/ Friday May 30 2003/ Notices. Available at: http://www.gpoaccess.gov/fr/index.html
  16. CMS (July 14 2003) Questions and Answers on the invitation to apply for "Real Choice Systems Change Grants for community Living" CFDA No.93.779.
  17. The New Freedom Initiative: A Progress Report, March 2004 (p.5), The White Domestic Policy Council. Available at: http://www.whitehouse.gov/infocus/newfreedom/newfreedom-report-2004.pdf
  18. Federal Register/volume 67, No.81/ Friday, April 26, 2002/ Notices. Available at: http://www.gpoaccess.gov/fr/index.html
  19. Federal Register/ volume 66, No. 99/ Tuesday May 22 2001/ Notices. Available at: http://www.gpoaccess.gov/fr/index.html
  20. Information regarding the grant activities in states is taken from the 2nd edition of the Compendium of the Systems change Grants for Community Living, CMS March 2003. Available at: http://www.cms.hhs.gov/systems change/default.asp.
  21. Information regarding the grant activities in states is taken from the 2nd edition of the Compendium of the Systems change Grants for Community Living, CMS March 2003. Available at: http://www.cms.hhs.gov/systems change/default.asp.
  22. Information regarding the grant activities in states is taken from the 2nd edition of the Compendium of the Systems change Grants for Community Living, CMS March 2003. Available at: http://www.cms.hhs.gov/systems change/default.asp.
  23. More information on Independence Plus is available at: http://www.cms.hhs.gov/independenceplus/
  24. More information on Cash and Counseling is available at: http://www.cashandcounseling.org/index.html
  25. The HHS and AoA announced a new round of awards on 16 April 2004 (http://www.hhs.gov/news)
  26. Further information is contained in the paper: Navigating the Long-term Care Maze: New approaches to Information and Assistance in 3 States. Available at: http://research.aarp.org/health/2001_21_maze.pdf
  27. CMS Systems Change Conference, March 3 2004, Baltimore, Maryland (presentation by Greg Case, Nancy Day, Doug Blakley called ‘Implementing Aging and Disability Resource Centers’). Available at: http://www.nashp.org/cmsconference2004.