Library

Steven Mendelsohn (2012, August). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society. New York: Burton Blatt Institute, Syracuse University.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in California (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in the U.S. (Updated). Long Beach, CA: Author.

Reinhard, S., Kassner, E., Hendrickson, L. & Mollica, R. (2012, May). State Long-Term Services and Supports Scorecard. What Distinguishes High- from Low-Ranking States? Overview of Three Case Studies. Washington, DC: AARP Public Policy Institute.

Boushey, H. & Glynn. S.J. (2012, April). The Effects of Paid Family and Medical Leave on Employment Stability and Economic Security. Washington, DC: Center for American Progress.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California’s Paid Medi-Cal Caregivers Are Vulnerable. Los Angeles, CA: UCLA Center for Health Policy Research.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California's Paid Medi-Cal Caregivers Are Vulnerable Los Angeles, CA: UCLA Center for Health Policy Research.

O’Leary, A. (2012, April). Protecting Workers and Their Families with Paid Family Leave and Caregiving Credits Washington, DC: Center for American Progress.

National Alliance for Caregiving. (2012, March). Multiple Sclerosis Caregivers 2012. Bethesda, MD: Author.

Legislative Analyst's Office. (2012, March). The 2012-13 Budget: In-Home Supportive Services Budget Update. Sacramento, CA: Author.

Boris, E. & Klein, J. (2012, March). Caring for America: Home Health Workers in the Shadow of the Welfare State. New York, NY: Oxford University Press.

Feinberg, L. (2012, March). Moving Toward Person- and Family-Centered Care. Washington, DC: AARP Public Policy Institute.

The SCAN Foundation. (2012, January). California's Proposed 2012-13 Budget: Impact on California's Seniors and People with Disabilities. (Fact sheet No. 23. ). Long Beach, CA: Author.

Family Caregiver Alliance. (2012). Fact Sheet. Hiring In-Home Help. San Francisco, CA: Author.

Adelman, T., Kitchener, M., Ng, T. & Harrington, C. (2012). Changes and inertia in the New York State Medicaid Personal Care Services Program: An Institutional Case Study. Journal of Aging & Social Policy, 24, 3, pp.309-327.

Grabowski, D.C. (2012). Care Coordination for Dually Eligible Medicare–Medicaid Beneficiaries Under the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.221-232.

Harrington, C., Ng, T., LaPlante, M. & Kaye, H.S. (2012). Medicaid Home- and Community-Based Services: Impact of the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.169-187.

Hawes, C., Moudouni, D.M., Edwards, R.B. & Phillips, C.D. (2012). Nursing Homes and the Affordable Care Act: A Cease Fire in the Ongoing Struggle Over Quality Reform. Journal of Aging & Social Policy, 24, 2, pp.206-220. doi: 10.1080/08959420.2012.660046

Mendelsohn, S., Myhill, W.N., & Morris, M. (2012). Tax Subsidizations of Personal Assistance Services. Disability and Health Journal, 5, pp.75-86.

Miler, E.A. (2012). The Affordable Care Act and Long-Term Care: Comprehensive Reform or Just Tinkering Around the Edges?, 24, 2, pp.101-117.

Seavey, D. & Olins, A. (2012). Can Home Care Companies Manage Overtime Hours? Three Successful Models. Bronx, NY.: Paraprofessional Healthcare Institute.

Stone, R.I. & Bryant, N. (2012). The Impact of Health Care Reform on the Workforce Caring for Older Adults. Journal of Aging & Social Policy, 24, 2, pp.188-205.

Weissert, W.G. (2012). A 10-Foot Rope for a 50-Yard Drop: The CLASS Act in the Patient Protection and Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.136-151.

FEMA. (2011, December). A Whole Community Approach to Emergency Management: Principles, Themes, and Pathways for Action. Washington, DC: Author.

Schoenbach, S. & Warren, L.B. (2011, December). Time to Care: How North Carolina Can Promote Health, Support Workers, and Strengthen Families. (DataBrief No. 20. ). Raleigh, NC: North Carolina Justice Center.

The SCAN Foundation. (2011, November, 28th). Proceedings Report: Inaugural Summit on Transforming California’s Long-Term Services and Supports Systems. Long Beach, CA: Author.

U.S. Department of Health and Human Services. (2011, October). A Report on the Actuarial, Marketing and Legal Analyses of the CLASS Program. Washington, DC: Author.

Feinberg, L. & Reamy, A.M. (2011, October). Health Reform Law Creates New Opportunities to Better Recognize and Support Family Caregivers. (Fact sheet 239). Washington, DC: AARP Public Policy Institute.

Kim, K. & Antonopoulos, R. (2011, October). Unpaid and Paid Care: The Effects of Child Care and Elder Care on the Standard of Living. (Working Paper No. 691). Annandale-on-Hudson, NY: Levy Economics Institute of Bard College.

Newcomer, R.J., Kang, T. & Doty, P. (2011, October). Allowing Spouses to Be Paid Personal Care Providers: Spouse Availability and Effects on Medicaid-Funded Service Use and Expenditures. The Gerontologist. doi: 10.1093/geront/gnr102

Patniak, A., Elliott, T.R., Moudouni, D.M., Fournier, C.J., Naiser, E., Miller, T.R., Dyer, J.A., Hawes, C. & Phillips, C.D. (2011, October 3). Severity of children’s intellectual disabilities and Medicaid personal care services. Rehabilitation Psychology. doi: 10.1037/a0025619

Summer, L. (2011, October). Examining Medicaid Managed Long-Term Service and Support Programs: Key Issues to Consider. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

The SCAN Foundation. (2011, September). Raising expectations: California’s long-term services and supports scorecard results. (Fact sheet No. 22). Long Beach, CA: Author.

Reinhard, S.C., Kassner, E., Houser, A. and Mollica, R. (2011, September). Raising expectations: A state scorecard on long-term services and supports for older adults, people with physical disabilities and family caregivers. Washington, DC: AARP.

PHI. (2011, August). State Chart Book On Wages For Personal And Home Care Aides, 2000 - 2010. Bronx, NY: Author.

Cynkar, P. & Mendes, E. (2011, July). More than one in six American workers also act as caregivers. Washington, DC: Gallup.com.

Feinberg, L., Reinhard, S.C., Houser, A. and Choula, R. (2011, July). Valuing the invaluable: 2011 update - the growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute.

Mendes, E. (2011, July). Most caregivers look after elderly parent; invest a lot of time. Washington, DC: Gallup.com.

Witters, D. (2011, July). Caregiving costs U.S. economy $25.2 billion in lost productivity. Washington, DC: Gallup.com.

The Arc. (2011, June). Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call to action. Washington, DC: Author.

MetLife Mature Market Institute. (2011, June). The MetLife study of caregiving costs to working caregivers: Double jeopardy for baby boomers caring for their parents. New York, NY: Author.

Anderson, L., Larson, S.A. and Wuorio, A. (2011, May). 2010 FINDS national survey technical report part 1: Family caregiver survey. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living.

Fox-Grage, W and Redfoot, D. (2011, May). Medicaid: A program of last resort for people who need long-term services and supports. Washington, DC: AARP Public Policy Institute.

Kassner, E. (2011, May). Home and community-based long-term services and supports for older people. Washington, DC: AARP Public Policy Institute.

National Senior Citizens Law Center. (2011, April). Medicaid Block Grants: Attacking the Safety Net for Low-Income Older Adults. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Consumer Voice for Quality Long-Term Care. (2011, March). Piecing Together Quality Long-Term Care: A Consumer’s Guide to Choices and Advocacy. Washington, DC: Author. Retrieved March, 2011 from http://www.theconsumervoi ce.org/piecing-together-q uality-long-term-care

PHI. (2011, March). Health Care Coverage for Direct-Care Workers: 2009 Data Update Bronx, New York: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

Bryan, M.L. (2011, January). Access to Flexible Working and Informal Care. Essex, UK: University of Essex, Institute for Social and Economic Research.

Kietzman, K.G., Wallace, S.P., Durazo, E., Torres, J., Soon Choi, A., Benjamin, A.E. & Mendez-Luck, C.A. (2011, January). Holding On: Older Californians with Disabilities Rely on Public Services to Remain Independent. Los Angeles, CA: UCLA Center for Health Policy Research.

Centers for Disease Control and Prevention. (2011). Emergency Preparedness and You Atlanta, GA: Author.

Elliott, T.R., Phillips, C.D., Patnaik, A., Naiser, E., Booth, E.A., Fournier, C.J., Miller, T.R., Moudouni, D.M., Hawes, C. & Dyer, J.A. (2011). Medicaid personal care services and caregivers’ reports of children’s health: The dynamics of a relationship. Health Services Research, 46, 4, pp.1803-1821.

Kusano, C.T., Bouldin, E.D., Anderson, L.A., McGuire, L.C., Salvail, F.R., Wynkoop Simmons, K. & Andresen, E. (2011). Adult informal caregivers reporting financial burden in Hawaii, Kansas and Washington: Results from the 2007 Behavioral Risk Factor Surveillance System. Disability and Health Journal, 4, 4, pp.229-237.

Newcomer, R., Kang, T. & Faucett, J. (2011). Consumer-directed personal care: Comparing aged and non-aged adult recipient health-related outcomes among those with paid family versus non-relative providers. Home Health Care Services Quarterly, 30, 4, pp.178-197.

Phillips, C.D., Patnaik, A., Dyer, J.A., Naiser, E., Hawes, C., Fournier, C.J. and Elliott, T.R. (2011). Reliability and the measurement of activity limitations (ADLs) for children with special health care needs (CSHCN) living in the community. Disability and Rehabilitation.

Reinhard, S.C., Kassner, E. and Houser, A. (2011). How the Affordable Care Act can help move states toward a high-performing system of long-term services and supports. Health Affairs , 20, pp.3447-3453.

Seavey, D. (2010-2011, Winter). Caregivers on the front line: Building a better direct-care workforce. GENERATIONS – Journal of the American Society on Aging, 34(4), pp.27-35.

Health Policy Research Center, State University of New York. (2010, December). Paying for Long-Term Care: Families or Taxpayers? Albany, NY: Author.

Federal Emergency Management Agency. (2010, November). People with Disabilities and Other Access and Functional Needs: Preparing and Planning for an Emergency Washington, DC: Author.

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved 40416 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author. Retrieved August, 2010 from http://www.hscfoundation. org/aboutus/publications/ caregivers_brief.pdf

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author.

Napoles, A.M., Chadiha, L., Eversley, R. & Moreno-John G. (2010, May). Reviews: Developing culturally sensitive dementia caregiver interventions: are we there yet? American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.389-406. doi: 10.1177/1533317510370957

Norton, M.C., Smith, K.R., Østbye, T., Tschanz J.T., Corcoran, C., Schwartz, S., Piercy, K.W., Rabins, P.V., Steffens, D.C., Skoog, I., Breitner, J.C.S. & Welsh-Bohmer, K.A. (2010, May). Greater risk of dementia when spouses have dementia? The Cache County Study. Journal of American Geriatrics Society, 58(5), pp.895-900. doi: 10.1111/j.1532-5415.2010.02806.x

Triantafillou, J., Naiditch, M., Repkova, K., Stiehr, K., Carretero, S., Emilsson, T., Di Santo, P., Bednarik, R., Brichtova, L., Ceruzzi, F., Cordero, L., Mastroyiannakis, T., Ferrando, M., Mingot, K., Ritter, J. & Vlantoni, D. (2010, May). Informal care in the long-term care system. European Overview Paper. (Grant agreement no. 223037). Athens/Vienna: Interlinks. Retrieved August, 2010 from http://www.euro.centre.or g/data/1278594816_84909.p df

Albert, S.M. & Schulz, R. (2010, February). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved 40230 from http://www.metlife.com/mm i/research/working-caregi ver-employer-health-care- costs.html#findings

Anderson, G. (2010, February). Chronic Care: Making the Case for Ongoing Care Princeton, NJ: Robert Wood Johnson Foundation.

Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

Steenhausen, S. (2010, January). California's Proposed 2010-2011 Budget: Senior-Related Program Reductions. (Fact sheet, No.1.). Long Beach, CA: The SCAN Foundation.

Fournier, C.J., Davis, M.J., Patnaik, A., Elliott, T.R., Dyer, J.A., Jasek, E.E. & Phillips, C.D. (2010). Modeling caregivers' perceptions of children's need for formal care: Physical function, intellectual disability and behavior. Disability and Health Journal, 3, pp.213-221.

Meng, H., Friedman, B., Wamsley, B.R., Van Nostrand, J.F. & Eggert, G.M. (2010). Choice of personal assistance services providers by Medicare beneficiaries using a consumer-directed benefit: rural-urban differences. The Journal of Rural Health, 26,, pp.392-401.

Robert B. Hudson (Ed.) (2010, Winter/Spring). Advancing Home and Community-Based Services: Transforming Policies, Programs, and Service Delivery in Long-Term Care Boston, MA: National Academy on an Aging Society. Retrieved August, 2010 from http://www.hcbs.org/files /193/9616/PP&AR.pdf

San Francisco. (2010). Health Care Reform and Family Caregivers. Family Caregiver Alliance: Author. Retrieved 40387 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=2397

Family Caregiver Alliance. (2010). Health Care Reform and Family Caregivers. San Francisco: Author. Retrieved 40370 from http://caregiver.org/care giver/jsp/content_node.js p?nodeid=2397

Kaiser Family Foundation. (2010). Focus on Health: Summary of New Health Reform Law. (#8061). Menlo Park, CA: Author. Retrieved 40265 from http://www.kff.org/health reform/upload/finalhcr.pd f

Coughlin J. (2010). Estimating the Impact of Caregiving and Employment on Well-Being. Outcomes & Insights in Health Management , 2(1), pp.40185.

Marziali, E., McCleary, L. & Streiner, D.L. (2010). Evaluation of an Assessment Battery for Estimating Dementia Caregiver Needs for Health and Social Care Services. American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.446-445.

Nyberg, J.P. (2010, Spring). Community College and Caregiver Training: Implications for Policymakers. (Caregiving Brief). New York, NY: International Longevity Center USA. Retrieved 40262 from http://www.ilcusa.org/pag es/publications/caregivin g/community-colleges-and- caregiver-training-implic ations-for-policymakers.p hp

Center for Medicare Advocacy, Inc. (2009, December). Medicare and Discharge Planning: Think Through Your Needs. CMA Weekly Alert. Washington, DC: Author. Retrieved 40151 from http://www.medicareadvoca cy.org/Discharge_09_12.03 .CHecklist.ThinkThroughNe eds.htm

Bornstein, S. & Rathmell, R.J. (2009, December). Caregivers as a Protected Class?: The Growth of State and Local Laws Prohibiting Family Responsibilities Discrimination. San Francisco, CA: University of California, Hastings College of Law. Retrieved 40164 from http://www.worklifelaw.or g/pubs/LocalFRDLawsReport .pdf

Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. (2009, December). Understanding Factors Associated with Work Loss for Families Caring for CSHCN. Pediatrics, 124. doi: 10.1542/peds.2009-1255J

National Alliance for Caregiving. (2009, November). Caregiving in the U.S. 2009: Executive Summary. Bethesda, MD: Author. Retrieved 40164 from http://www.caregiving.org /data/CaregivingUSAllAges ExecSum.pdf

Shriver, M. & Center for American Progress. (2009, October). The Shriver Report: A Woman's Nation Changes Everything. Washington, D.C.: Center for American Progress.

Marin, B., Leichsenring, K., Rodrigues, R. & Huber, M. (2009, August). Who Cares? Care Coordination and Cooperation to Enhance Quality in Elderly Care in the European Union. Vienna, Austria: European Centre for Social Welfare Policy and Research.

National Alliance for Caregiving. (2009, April). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: Author. Retrieved 40164 from http://www.caregiving.org /data/EVC_Caregivers_Econ omy_Report%20FINAL_4-28-0 9.pdf

Cardin, D. (2009, February). Report Offers Complete Look at Issues Facing Direct-Care Workforce. Retrieved 23rd June, 2010 from http://phinational.org/ar chives/report-offers-comp lete-look-at-issues-facin g-direct-care-workforce/

Carers New South Wales. (2009). Invisible carers come into focus: A summary of the National Health and Hospitals Reform Commission Final Report 2009. Sydney, Australia: Author.

National People with Disabilities and Carer Council. (2009). Shut out: The experience of people with disabilities and their families in Australia. Sydney, Australia: Author.

Minnesota Office of the Legislative Auditor, Program Evaluation Division. (2009). Evaluation Report: Personal Care Assistance. St. Paul, MN: Author. Retrieved 39854 from http://www.auditor.leg.st ate.mn.us/ped/2009/pca.ht m

Hilgeman, M.M., Durkin, D.W., Sun, F., DeCoster, J., Allen, R.S., Gallagher, D. & Burgio, L.D. (2009). Testing a theoretical model of stress process in Alzheimer's caregivers with race as a moderator. Gerontologist, 49(2), pp.248-261.

Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28(1), pp.24-44.

Rhee, Y., Degenholtz, H.B., Lo Sasso, A.T. & Emanuel, L.L. (2009). Estimating the quantity and economic value of family caregiving for community-dwelling older persons in the last year of life. Journal of the American Geriatrics Society, 57(9), pp.1654-1659.

Saxton, M. (Ed.) (2009). Sticks and stones: Disabled people's stories of abuse, defiance and resilience. Oakland, CA: World Institute on Disability.

Bridges, K. (2008, December). AARP Member Opinions on Supportive Services in Georgia. Washington, D.C.: AARP Public Knowledge Management.

Schubert, C.C., Boustani, M., Callahan, C.M., Perkins, A.J., Hui, S. and Hendrie, H.C. (2008, November). Acute Care Utilization by Dementia Caregivers Within Urban Primary Care Practices. Journal of General Internal Medicine, 23(11), pp.1736-1740. doi: 10.1007/s11606-008-0711-0

Massachusetts Department of Public Health and the Center for Survey Research. (2008, July). Studying the Unmet Needs of Adults with Disabilities in Massachusetts, 2007. Boston, MA.: Author. Retrieved 40436 from http://www.mass.gov/Eeohh s2/docs/dph/behavioral_ri sk/caregiver_report_2008. pdf

Johnson, R.W. (2008, June). The strains and drains of long-term care. American Medical Association Journal of Ethics, 10(6), pp.397-400. Retrieved 39654 from http://www.urban.org/publ ications/1001188.html

Institute of Medicine. (2008, April). Retooling for an aging America: Building the health care workforce. Washington, DC: Author.

Aldrich, N., Benson, W.F. (2008, January). Disaster preparedness and the chronic disease needs of vulnerable older adults. Preventing Chronic Disease [Pre Chronic Dis], 5(1), pp.27.